However, her illness forced her to leave the platform in 2017. "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. She had a popular YouTube channel, gave Shed work on a book promising it wouldnt be another happy sick person book and appreciate the small things like swims in the ocean for as long as she was able. [7], Wineland was chosen to be the keynote speaker at AARC Congress, the 63rd International Respiratory Convention and Exhibition. Wineland was a singer, artist, and composer. She decorated her hospital room, and posted inspirational messages on its walls. The Foundation has funded more than 26 families till now. What happened in the Ukraine helicopter crash? The 2019 film Five Feet Apart was inspired by and dedicated to Wineland, who served as a consultant on the film. When she turned 13, she had a routine surgery that led to a blood infection that caused lung failure after which she was placed in a medically-induced coma. The cause of death was a massive stroke she suffered soon after the transplant surgery. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. The Plain Dealer. Youll be missed deeply. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. The BBC is not responsible for the content of external sites. [3] She joined the Philips "Breathless Choir" as a soloist. Despite suffering from a critical illness, she maintained a positive attitude to life. Her organs were made available for transplant. At the time of birth, she had the life expectancy of only 5 years old. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. In 2017, Yeager recalled a conversation with Claire about death. . You are an inspiration and brought joy to many. Menu. As a TEDx speaker, she gave motivational speeches at numerous conferences worldwide, and as a YouTube star, she around 250,000 subscribers. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. Is there someone you miss whose memory should be honored? A self-described goofball, she usually engaged people with humor and optimism. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. 2.61M subscribers Claire Wineland Dies at 21 and Leaves Beautiful Message Cystic fibrosis activist reveals the most important lesson she learned while living her life in a hospital room. She had a popular YouTube channel, gave public speeches, and made appearances on CNN and The Dr. Oz Show. She founded the non-profit Claires Place Foundation to provide emotional and financial support to families living with cystic fibrosis. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. I am 17 years old and a senior in high school. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. She founded her own company at 13. Required fields are marked *. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. The cause of death was a massive. She founded the non-profit Claire's Place Foundation to provide emotional and financial support to families living with cystic fibrosis. We would like to show you a description here but the site won't allow us. Claire Wineland was a person who did not like to be pitied. She once escaped from the hospital so she could attend a Bernie Sanders rally. Save my name, email, and website in this browser for the next time I comment. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. She did. Living a life we can be proud of is something we can control. Death is Inevitable. She'd also get a butt.She knew that the call could come at any minute, and on August 26, it did. 2023 BBC. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Iran man who beheaded wife jailed for eight years, Celebrities who say their children will get no inheritance, Polar bear kills woman and boy in Alaska village, Baby among six killed in possible cartel hit in US, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. Find an Obituary . The medical team that tended to her became family. "Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, Maximum two drinks a week, Canada guidance advises, US porn star declared unfit for sex crimes trial. [11], On August 26, 2018, Wineland underwent a double lung transplant. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. It's a reality of living with cystic fibrosis she's come to accept. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. "Life isn't just about being happy. She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. Your email address will not be published. She was 21. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. She had a popular YouTube channel, gave The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. March 04, 2022 "Disability is not the word that should be used to describe what Claire had because she turned it into her platform. The family intends to honor her memory by continuing to advance Claires Place Foundation, which she established to financially support others affected by her lifelong disease. The 21-year-old was diagnosed with cystic fibrosis at birth, and was taken off life support on Monday after. Your effort and contribution in providing this feedback is much Her mother, Melissa Nordquist Yeager, and father, John Wineland, separated, when she was three years old. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed. Claires foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. Before signing off, Claire implored viewers to do one thing. What if they poured everything into her transplant, and she didn't make it or was not able to work again, she explained later. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. She sat in an educational meeting at UC San Diego Healths transplant center and diligently took notes. Read full obituary. "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. Living a life we can be proud of is something we can control." - Claire Wineland. Did you encounter any technical issues? By asking for it, she said, she could relax and get in the headspace for whatever would come next. Really. appreciated. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. I don't spend any time thinking about the day that I'm cured, or the day that I'm healthier, and that's because I know that on a certain level, it doesn't matter. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. Kalpana Chawla Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. In April 2010, after a routine surgery, Wineland had an infection which led to lung failure. Im not an innocent and Im not a child. @larissaperoux We some cheese balls just cheesing it up. She inspired countless people, invited no, demanded honest talk about illness and mortality, and brightened the worlds of those she touched with her smile, spunk and spirit. I want to see where it goes. In early 2018, Winelands health deteriorated, which necessitated her to undergo a double-lung transplant. I would like to acknowledge Claire Wineland who passed away last night. Im grateful for all the people who donated to help me get through transplant. I didnt expect to have a chance. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. I'm willing to deal with anything.". "Go enjoy it, 'cause there are people fighting like hell for it.". Though there was only 1% chance of her survival, she miraculously came out of it after 16 days. Why a terminally ill young woman has changed her mind about living. She is my new hero, and forever. Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. Juli Briskman Height, Weight Age, Biography, Family, Facts & More, Amanda Segel Age, Boyfriend, Husband, Family, Biography, Facts & More, Heather Moore Age, Husband, Biography & More. Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Get to know the real life super hero behind our bubbly Snap identity. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'. On September 2, 2018, she passed away peacefully, at the 'US San Diego Thornton Pavilion.' Her organs were donated to needy patients. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Claire Wineland (1997 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Discovery Company. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. In August 2017, after taking a break from YouTube videos for a year, Claire Wineland returned with a new channel. At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. "Death is Inevitable. She was 21. We invite you to share condolences for Claire Wineland . Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. Due to her life treatning disease, she spent the majority of her life in hospital. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. ", Claire took the gift of life and her health seriously, but she didn't take herself too seriously. (Bio, Age, Family, and Death) Claire Wineland was an author and activist who was born in Austin, Texas, on 10th April 1997, to Melissa Yeager and John Wineland. Read about our approach to external linking. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. I didnt realize how much I didnt expect to live this long. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. She had a popular YouTube channel, gave . Given the severity of the stroke and Claire's advance directive, it became clear that it was time to let her go. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. When I was younger and obsessed with becoming an artist, the hospital was my New York loft apartment. They saw her into this world for her first breath and were with her for her last, Laura McHolm, the board chair for Claires foundation, wrote in a Facebook post. She never emerged from her medically induced coma. It hurts everything inside of me to make this video, she said into the camera. I'm grateful for the chance to keep being a person," she said. Wineland was invited as a speaker at many international conferences. "If my biggest problem in life was to be healthy, I'd be incredibly bored. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. She appeared in an episode of Red Band Society and in the documentary series My Last Days. "It's a GO!!!" Claires gift is huge, I want your family to know that your daughter is a hero.. She is dynamic and so soul filled, a little angel, rest in Peace Claire, YOU are MY HERO, Your email address will not be published. Music was her biggest stressbuster and was part of Philips Breathless Choir as a solo artist. Claire Wineland, who inspired millions on YouTube chronicling her cystic fibrosis battle, has died after a lung transplant By Kyle Swenson September 4, 2018 at 3:58 a.m. EDT YouTube star. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. She was a part of The Clairity Project, a website that featured educational and inspirational videos uploaded on YouTube. Its objective was to inspire people living with terminal illness, to lead a better life. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). She grew up loving to perform and landed her first role inThe Music Manat 4 years old. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". Wineland enjoyed performing on stage from a young age. Paul Gray Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Entrepreneur and founder of the award-winning non-profit organization Claires Place Foundation, which provides support to families living with Cystic Fibrosis. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. Some people worried that she'd waited too long and wouldn't be given the chance at continued life.But Claire took on the evaluation process to get on the list with laser focus. She wasn't done contributing. Despite emergency surgeries, and what her mother described as Herculean efforts to try to save her, the daughter she knew was gone. . Claire Lucia Wineland (April 10, 1997 September 2, 2018) was an American activist, author, speaker and social media personality. She wasnt done contributing. The BBC is not responsible for the content of external sites. CNN Sans & 2016 Cable News Network. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. "Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. The Times-Picayune. The BBC is not responsible for the content of external sites. Michael Jackson Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Today, Claires Place Foundation continues to carry on Claires legacy. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. Extended Hospital Stay Grants provide financial assistance to families who find it difficult to arrange funds for an extended hospital stay. By mid-August, she was back on and feeling ready. She was a wonderful person and the world . Claires Place Foundation offers two kinds of support. The years of telling myself I can do it on my own are over. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. @larissaperoux We some cheese balls just cheesing it up. "Its been a very long few days and I wanted to give everyone an update on how Claire is doing", "Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball', "Who Is Claire Wineland? I am also, like thousands of other people living on this planet, sick. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to the Cystic Fibrosis Foundation. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Her foundation said she had died peacefully, surrounded by family. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. Claire Wineland was known for her positivity, warmth, and humor. She passed away peacefully, with her parents by her side. On September 2, 2018, she passed away peacefully, at the US San Diego Thornton Pavilion. Her organs were donated to needy patients. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. Despite facing a life-threatening disease, she always remained positive, smiling and motivated people with her speeches and activities. Biography - A Short Wiki Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. Senior producer, Legacy.com. She joked that the squats she was doing, upon doctor's orders, would help get her more than lungs. I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. So grateful for everything this month. She performed with Philips Breathless Choir, as a solo singer. A double-lung transplant, when successful, can add years to a patient's life.Claire's parents learned to trust their independent and strong-willed daughter. At a TEDx talk she gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. No Claire was born with a severe disease- Cystic fibrosis (CF), a condition that affects breathing and digestion. Rest in peace dearest Claire As most of you know, September 2, 2018 at 6:00pm, Claire Wineland passed away. She died on Sunday September 2, 2018, after suffering a. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Maximum two drinks a week, Canada guidance advises, Baby among six killed in possible cartel hit in US, German police deny Greta's detainment was staged, US porn star declared unfit for sex crimes trial, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. At one point, Claire looked at her mom and said, "After you die, you're closer to everyone you love because you're part of everything," Yeager remembered.These words were a gift, a reminder that Claire would remain with her always, even after she was gone. Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughters aura and her ability to lift up those around her. Search by Name. Claire's Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. At the time of birth, she had the life expectancy of only 5 years old. There is no cure, but dutiful breathing treatments which eat up hours each day can help with symptoms and complications. Harris (19912023), American Idol contestant, Keenan Cahill (19952022), YouTube celebrity lip syncer, Lupe Serrano (19302023), ballerina who danced with Nureyev, Joseph Jo Mersa Marley (19912022), reggae musician and grandson of Bob Marley. Cystic fibrosis is a genetic condition with no known cure. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. I'm grateful for the chance to keep being a person," she said. Claire was an activist, author, TEDx Speaker, social media. Gregory Hines Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Im grateful for my own head and for all the weird things in it. Really. Youll be missed deeply. Read about our approach to external linking. [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. It was a welcome, albeit terrifying, development for those who loved her. Eldridge R. Johnson Cause of Death, Age of Death, and Other Facts! Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. ", Claire Wineland, reflecting on her outlook on life. ! she posted on Twitter, not long before she was wheeled into the operating room in San Diego. she posted on Twitter, not long before she was wheeled into the operating room in San Diego. Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. Claire Wineland was born on April 10, 1997, in Austin, Texas. Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. Wineland uploaded videos in her personal vlog. Who was Ukrainian minister Denys Monastyrsky? Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. Here are some tips on how to prepare for death!Visit the Official CLAIRE MOVIE WEBSITE: https://clairemovie.comClaire Wineland Social MediaFacebook: https://www.facebook.com/clairewinelandInstagram: https://www.instagram.com/claire.wine SUBSCRIBE to Claire's Place Foundation Follow Claire's Place on FACEBOOK: https://www.facebook.com/clairesplace1/Check us out on INSTAGRAM: https://www.instagram.com/clairesplacefoundation/TWEET us at: https://twitter.com/clairewineland Visit CLAIRE'S PLACE FOUNDATION: https://clairesplacefoundation.org/ About Claires Place Foundation, Inc.Claires Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). She knew that the call could come at any minute, and on August 26, it did. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited cures, telling her to eat more pineapple or that a mushroom cleanse would take care of everything. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. Jace Prescott Cause of Death, Date of Death, and More! She underwent more than 30 surgeries during her lifetime. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. She never emerged from her medically induced coma. 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